Kyndall was diagnosed with a very rare Telomere Biology Disorder. The telomere length in all her cells are critically short. This can potentially lead to various organs failing throughout the course of her life. Her bone marrow has been the first organ to fail. We found out in 2020 that she would need a bone marrow transplant. Her 12 year old sister was a perfect match and donated her bone marrow to her little sister.
Kyndall was admitted to University of Nebraska Medical Center in Omaha, Nebraska at the end of August 2020 to begin 8 days of chemo. She received her Bags of Fun after she had a dose of radiation. We were both blown away by how amazing the bag was. There were TONS of amazing crafts, games and activities that were perfect for a 6 year old girl. The items included unicorns, princesses, crafts and jewelry which were all of her favorite things! Every single pocket of the backpack was full! All of those gifts helped us all feel extra special and loved. It was a true blessing to have so many choices of crafts and activities to help keep her busy over the next 4 weeks of her hospital stay. Thank you for so generously bringing joy to our family during that time. We are forever grateful!